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彰縣民營失智日間照顧今啟用
Sep 30th 2013, 14:03

摘要：彰化一名七歲女童小琦，罹患俗稱「泡泡龍」的罕見疾病，皮膚缺乏蛋白質黏著劑，只要輕輕一抓、一撞，就會潰爛起水泡，全身宛如泡泡龍一樣，又痛又癢，得靠像無菌紗布一樣的敷料貼住傷口，最近她又發病媽媽申請健保給付卻被駁回，急得不得了。 因為一個月三萬多的醫藥費，壓得他們喘不過氣來，不知如何是好

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